I just found this forum today and I'm happy to see that I'm not really the only one out there with FAP. I'm a first generation diagnosed in 2014 and currently 20 years old. I'm happy they caught it early for me to not have complications later on in life but I feel a bit lost. I go to Memorial Sloane Kettering for treatment and I'm thrilled to have some great doctors that know what they are doing and I trust them- but I still feel like I don't have the whole story. I've never met anyone with FAP and with the surgery coming so soon I was hoping I could have some advice or tips about anything. Its a one step colectomy / J-pouch surgery. It kind of scares me honestly but I know its much better than the latter. So feel free to share your experience if you wish, I have also proposed a few questions so feel free to answer if you have a moment to spare, and I really appreciate it! (I promise I'll get to reading all the posts in the FAP forum after I prepare for some midterms!!)
Did you have issues with loosing or gaining weight after bowels returned to normal after the surgery?
How long after could you walk regularly or exercise?
How has it affected abdominal muscles and core if at all?
Are desmoid tumors something to be concerned about? (doc said its 1/5 chance)
Is it safe to assume I'll be ready to head back to college in late august if the surgery is the second week of June?
Sorry for the bombardment, I'd just really appreciate any and all feedback. Thanks!