I am only about 2 months post take-down, and I know that I have a lot of being patient and letting things adjust to do, but I am also curious if some of the things I am experiencing are normal...
Since surgery I have experienced the obvious burning, and even worse than that is the severe itching especially right after I go. And I cannot stress enough how bad the itching is at times... it feels like the problem is on the inside and I can't even sit still in my truck. I installed a bidet which does help a little bit with keeping the skin less irritated, but it isn't perfect. I also have a basket full of wet wipes and creams to help... and so far calmoseptine is the best... although messy.
Another problem I have is leakage at night. My body is already getting better at holding it, but even the nights I don't wake up to go, I find that in the morning I am having to change my underwear or clean myself. Does that ever get better? Am i ever going to be able to keep my underwear clean?
The biggest thing I am dealing with is the insane pressure build-up and then that moment of having to hold it for a few seconds before it goes away. That happens to me often and at times over and over again. My doctor thinks I have pouchitis because of that reason, and because when I try to go to the bathroom, hardly anything comes out of me. My stools are getting thicker, but it just kind of drips out of me and hardly anything passes. When I am done and stand up and leave the bathroom I sometimes immediately feel like I have to go again. I have been taking Flagyl for almost two weeks now, and it is really hard to tell if it has helped or not as I still experience all these things. I think the antibiotics are also the reason why I constantly feel exhausted and down in the dumps.
I am 25 and have had U.C. since I was 12. I just want to feel better and not have to constantly worry about bathrooms and pains and where I can and can't go. Even my scar has been hurting and it feels like there are staples underneath my skin (which is strange). I know healing takes time, but I am curious if all of these things I feel are normal or if something else may help me. I normally am active and lift weights and I am very nervous to do so. I want this surgery to work and be my saving grace long term - but it is hard to stay optimistic. Sorry for the long rant...thankful for any responses!