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Hi everyone Smiler I've been lurking in the background for a while and have found this forum extremely informative. So, I got my courage up and decided to join.

I had megacolon/rectum diagnosed in November last year (years of severe constipation with no help whatsoever). I now have an ileostomy (April 2014) and due to have the second stage done in October followed by takedown when I get my courage up (again).

I am still overwhelmed by what has happened and the thought of a j-pouch is scary to be frank. From 'going' once every two/three weeks to possibly expunging numerous times during the day is a bit overwhelming to say the least. However, these things are sent to try us.

So... I shall continue to read the forum and hopefully get as much advice possible to allay the fears I have (and even offer advice when I feel competent enough).

Great to meet you Smiler
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Welcome! I actually have a jpouch and had a temp ileostomy due to rectal cancer and FAP. But I've had my jpouch now for 6 months and you are very smart in thinking about going to a pouch bgc you are right when they say you will be going so much more frequently. I'm not trying to scare you but share my story with you. I'm actually contemplating going back to the bag. I had radiation before my surgeries and now that I go constantly there are these cuts that won't heal, on my anal area, bc doctors and I think it's due to not enough oxygen getting to the tissue to heal it. But what I've read on here there are a lot of successful jpouchers. Hope to hear from you!
Hi there Krys777 - I am so very sorry for what you are going through Frowner I have heard that some do give the j-pouch a try and revert back to an ileostomy. At least you tried and to be fair, if your cuts aren't healing and you are in constant pain, then reverting back is the right decision. I really wish you well *hugs*

Hi Californication (love the name lol)!! ...and yes - you read that right :S Things started really slowing down a while back and despite numerous trips to the doctors and hospital, I was only given enemas, supposotries etc. If only they gave me a CT scan and MRI, there may have been an outside chance that I wouldn't be sitting here without a bowel. Incidentally, my consultant believes I have had this problem since birth (I have always had problems); just no one picked up on it :S You have to bear in mind that my colon was three times the size and width of a 'normal' colon, so there was a lot of *ahem* baggage to carry around. The pain was pretty bad (okay - it was awful but I had to suffer in silence as I am sure the doctors I saw thought I was a hypochondriac).
xxx

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