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It's sorta the same thing but it only targets the gut. Less to no side effects. You need to fail one or the other before insurance will pay for this.  I've been on it 6 months now. I could not tolerate Remicade Yes it's a infusion every 4 or 8 weeks depending how you do. I'm on a every 8 week schedule. Also the infusion is about 1/2 hour. I wish this was around 20 years ago. Maybe I'd still have my colon. But at least it's saving my pouch.

 

 

Last edited by AllyKat

I had 2 induction infusions of Remicade and developed "drug induced lung disease" specifically ground glass opacities. I am out of breath whenever I even get up to walk across the room! I'm supposed to have some pulmonary function tests tomorrow and the I understand it's high dose steroids to reverse it. 

I believe it was working for me. I was starting to feel good again.

Now I wonder if all the other biologics are out of the question and the only thing left is removal of my pouch. Any one hear of this?

Last edited by LoriB

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