Hi All! My name is Ross and I am a 57 year old male that has had UC since 1998 with no flareups until June, 2008.
After my most recent colonoscopy (September, 2019) my GI called (his nurse) and said the samples were benign and during my follow up with my GI he told me he was giving me massive probiotics to try and reduce and possibly get rid of the inflammation that was present. If it didn't work he said there were other meds we could try and hold off surgery for futher down the road.
About a week after my last consult with me GI, his nurse called and told me that I needed to consult with a surgeon and gave me his number. During the consult, the surgeon was able to speak to my GI and told me that one of the samples was precancer. I was floored and pissed. The surgeon said that both he and the GI would rerun the pathology to be sure.
On Tuesday (Oct. 29, 2019) surgeon called and said it was still positive and the he recommended surgery. I am in the process of getting a 2nd and possibly a 3rd opinion. Any recommendations of who to contact....I live in Fairfield, CT.
If it turns out that I do indeed need surgery my biggest fear and or concern of going with J pouch is how much control does one have.....I fly to Brazil once a year and I also am very passionate about American Rev War reenacting and it would devastate me if I had to give that up.....
Thanks for any advice......
(I didn't know where to post this so I posted it in General Discussion and here)