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I am 23 years old and had to do emergency surgery for my ilestomy back in march when i was 16 weeks pregnant because I was hours away from dying due to my ruptured colon. They ended up removing the entire thing. My recovery was long and awful especially being pregnant and being allergic to the ostomy supplies. I was so ready to get rid of my bag that I don't feel like I was fully aware of what a jpouch was or how it would affect my life.
I love not having a poop bag on my stomach anymore but I am so miserable with my jpouch. I'm basically all skin and bones. My muscle tone is gone. I'm so weak and out of shape I can't even go to the mail box without needing a break. I feel like my quality of life should be better than this. Does it get better?
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Your story is similar to mine. It does take time to get adjusted to the J-pouch and and the new "you". I did not have my disease for very long or all that frequent for me to judge if the new me was better than the disease. But I slipped downhill rapidly during my last flare.

I never heard of a J-pouch until my GI told me that it would be a good option after I lost my colon. Each and every step of this journey is hard, but you do get stronger with each day. Activity and attitude are key essentials to get you through each and every hurdle.

Just when you think you can longer fight these debilitating battles, you just may amaze yourself.

Stay strong and positive for yourself and your family.

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