I have just joined the J Pouch group-for some reason I never googled my own problem-I am a nurse and always looking up stuff for other people but never thought of looking up my own condition. I always thought I was alone with my J pouch problems-what a shock to discover others like me!
I had my surgery many years ago-in1982-have had pouchitis every 5 years or so. This last bout lasted for a while and I am going to see a doctor at the Cleveland Clinic-Dr Bo Shen.I want to get established with a gastroenterologist that understands this condition and hopefully will be happy with this physician.I feel a lot of empathy for my fellow sufferers and realize it could be a lot worse.My heart goes out to you all