Hello All,
This is my first post but I've been reading comments for a while now.
The reason for my post is that I just got my next surgery date (7.7.14) today from my doctor and although I thought I was dealing well with the whole situation, I am most definitely not. I've been at work holding back tears all day.
I'll make a long story short. Was diagnosed with Crohn's in 1998, had my first surgery in 1999. Had no issues for 10 years and then all hell broke loose. I had 11 surgeries in four years, felt well for a couple years and am now through another round of procedures.
I have an ileostomy right now and for my next surgery the doctor is going to rebuild my j pouch. Has anyone gone through the rebuild before? I'm freaking out because the last time I had a major surgery it went horribly wrong and I ended up in ICU for almost a week while they tried to figure out why and where I was bleeding internally. During this time I had three emergency surgeries in a 24 hour period, none of which I remember. I just have visions of the same thing happening but worse this time because I think this is a bigger surgery. I have to meet with a plastic surgeon beforehand which doesn't comfort me at all!! The source of all the surgeries is a fistula that refuses to go away. Also, the doc said my pouch wasn't getting any blood flow in certain parts which was causing major issues.
I went through the first procedure of this round on my birthday in November (happy frickin birthday to me!) and it went well according to my doctors.
I'll have one more surgery after this next one which will be to hook everything back up and get rid of this god awful ileostomy. That one I'm not worried about.
Anyway, just had to vent a little. My family and friends have been great but it's good to get feedback from those who can relate.
Thanks for listening.
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