Hello, The information on this site has been invaluable to me so far. Thank you all for sharing. I haven't done the j pouch yet, but assume it is coming. A few questions and comments:
1. Do you still have to take meds after the j pouch similar to what you took pre pouch? A number of people are talking about Humira and prednisone, and other collitis drugs after they had their j pouch.
2. Many people seem to be talking about the same "additional" ailments (in addition to the urgency, diarhea, etc of UC) even after the j pouch -- the joint pain, fatique, vitamin deficiencies, leakages, butt burn. Am I getting an accurate picture?
3. Just an observation: I started with endometriosis at 13 and had it until I had a complete hysterectomy at 40. Then I got the fibromyalgia, and after 15 or so years, was thinking I got it under control, and now I get the UC. I am starting to think I am doomed to a life of some sort of autoimmune disease causing me extreme pain and misery. So what is next, assuming I ever get the UC under control?