Hello, new J-Poucher here. I've had my j-pouch for a few months (August 2016) and I'm still not sure about pouchitis or when I should call my doctor. 

I had my 1st bout of pouchitis at the end of January this year with over 20 BMs a day with very liquid stool, leakage at night and urgency even with taking up to 8 Lotomil a day. I called my doctor and got put on Cipro for 10 days. I took Floraster daily for 2 weeks after as a preventative to see if that would prevent a future bout of pouchitis. 

Now about a month after finishing Cipro, I'm worried that I may have pouchitis again. I've had very liquid stool for the past week despite eating safe foods but the urgency hasn't gotten too bad yet. I just had a leakage (hence why I'm up at 3 a.m!) but I just took 3 Lotomil so hopefully I'll be okay for a bit. 

Should I be concerned that I'm experiencing pouchitis again? I'm still so new to my j-pouch that I'm not sure. Any advice would be greatly appreciated! 

Original Post

This sure sounds like pouchitis.  You.may not have been on Cipro quite long enough. You might ask your doctor to test you for C. Diff before starting you back on antibiotics.

Florastor doesn't prevent typical pouchitis. It's a yeast-based probiotic that may help prevent C. Diff from developing, especially when on certain antibiotics (like Cipro). Bacterial probiotics like VSL #3 or Align may help prevent or delay pouchitis recurrences.

It may also mean that Cipro wasn't the best treatment for you. Unfortunately, it is not an exact science.


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