Hi all

I have had some ok results for chronic pouchitis using Manuka Honey. Basically I slosh it on toast every morning, about 4 teaspoons. I cant say it has cured my pouchitis of 15 years, but it has stopped the bleeding over 6 months along with the antibiotics, I have stopped antibiotics about 3 weeks ago, and still no bleeding, i'm not completely free of pouchits, but I have now incorporated a probiotic and will see how that goes. Also using benefibre after dinner helps me to sleep longer in the night but I do feel like it dehydrates me a bit, so I dont do it every night.  Although I think its good to clear out the pouch better. Anyway, hope this helps!

Original Post

Hi Sherry - What brand of Manuka Honey do you use?  Do you buy it online?  I am at my wit's end with pouchitis, and I am facing surgery to have the pouch removed. I have cycled through all the biologics (latest being Stelara), and I cannot seem to attain remission.  Cipro works, but I do not want to take cipro for the rest of my life! 

I use the New Zealand Manuka honey mgo 400 it is a bit pricey but it's worth a try. I used it alongside antibiotics for several months and then stopped the antibiotic. Still unsure of results but I feel ok which I have never before without an antibiotic! the directions are a spoonful half an hour before meals 3 times a day but I'm hopeless at remembering so I use equivalent to 4 teaspoons on toast in morning. And after a few weeks I've incorporated a probiotic at night. I'm still adjusting and trialling. Lots have success with the honey! 

My colorectal surgeon has actually run clinical trials with Manuka honey, and he recommended it to me when I started having pouchitis-like symptoms. In his trials he actually used Manuka honey enemas -- nothing like going straight to the source I guess! I never tried that, I only ate it for a while. And yes, you have to be sure to get the right stuff. There's lots of info on the internet about it and its positive effects on the gut.

Joe, I can't actually remember what he said about it, and I never tried it myself. I do know that you can't heat Manuka honey too much or the anti-inflammatory properties really diminish, if not disappear entirely. When I was drinking it, I would put it in a glass with some warm tap water, and it would eventually dissolve. Then I'd top it up with cold water or juice. I imagine the same thing could be done for an enema preparation (not with juice obviously )

Update - 5 months later, still antibiotic free. (after being on every antibiotic and exhausting them all for 16 years) I don't seem to tolerate the probiotics with antibiotics or Honey. Seems to cancel it out. Haven't had a scope, but no blood and feeling good. Worth a try to anyone ready to give up on pouch like I was, in all ive been taking the honey for nearly a year and I'd give it that long before giving up! Good luck

Add Reply

Likes (1)
StarryNight
Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×