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I found a doctor in Madison to do my scope, at the UW Hospital. I called the Mayo Clinic for instructions and to have some questions answered as I am a patient there. I had a scope done in 2001 at the Mayo Clinic and just wanted to talk to them to feel more informed about the process and what instument was to be used on me here. I don't know another person in Wisconsin with a Kock Pouch, and most doctors don't even know what it is or even heard of it. I will be having no sedation, which I've never had on my past ones either. I have informed the UW Hospital they may use this as a learning tool as the UW Hospital is a teaching hospital. The more people that know about the Kock Pouch the better! Big Grin
My Kock Pouch is 34 years old and I have had no further surgery since May 1978 on my valve or pouch. I am very fussy about who touches my pouch and want to know everything about the process of scoping by the original Kock Pouch doctors to make sure it is being done correctly. Alot of doctors don't want to deal with a Kock Pouch because they don't know anything about it or even what it is. I say be informed, don't just let any doctor touch you.
Hi Jasmine...yes us with long term awesome KPs are very relunctant to have a non specialist scope. I am very lucky, my GI dr in my hmo group is familiar with the KP and does mine.

He uses a very small child size cath. He is not able to do it in his office (like the surgeons usually do as you know) so it's done out-patient endoscopy. I can get sedation if I want.

It's nervewracking for sure. I don't know if you've called around to find someone. I hit the jackpot as I was in the hospital for diarhea and they assigned him. I freaked out at first but he explained all about the KP and assured me he'd be gentle.

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