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Hi Iv had my pouch for almost 29 years. I had UC for only 14 months. Iv had pouchitis a few times and a blockage but mainly ok. I love my pouch. 

I was on remicade for 5 years which cleared up the inflammation but last year started with horendous pain in my joints so was hospitalised and they have now stopped the remicade and put me on Sulfazalazine Hydroxychoroquine and 6 mercaptapurine. 

I’m very well apart from terrible thrush which is the drugs and my immune system being suppressed. Has anyone experienced this? 

 

Also I live in the uk.

well done to all pouch people we are heroes. 

 

Love  to alll

Linzalisha xxx

I I was  on Al  sulfadine with prednisone for the first year after diagnosis of UC ....then only alsulfadine for about 18 years until pouch surgery.  After surgery only iron and B 12.   Have not heard of your surgeon, only familiar with those at Johns Hopkins, where I had mine done.  Perhaps Taylor went to Mt Sinai in NYC, which is an excellent place for j pouch and I did  consider it.  Since I live in Baltimore area, chose Hopkins.  Yes, I guess we are hero’s along with all who undergo life style changing surgeries......Trish

 

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