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Just want you to realize I have an excellent doctor here in NYC, however, I really want new eyes to look at my problems, sometimes another doctor sees things a lot differently so think after so many years with my gastro I might need some new opinions to maybe get some help after suffering for so long.  If anyone is living in New York City and knows of a really great gastro doctor who works with severe IBS and sibo and j pouch,  who accepts medicaire, I would so love to hear from you. 

Thank you so much for all the wonderful advice I get here.  Michael NYC

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Mikey I'm from NJ.  We were seeing people at Robert Wood Johnson, but our situation has just gotten really dier.  I dont know where you presently being treated, but we are going to see some people at Weill Cornell medical,center over on York.  the GI people we are going to see dr. Bosworth and the surgeon we are going to see is Dr. Shukla.  I have not met these people yet, but have appointments over there on June 17.  I have heard good things about their IBD center.  If anyone here has seen or heard of these people please jump in and give me some insight as well.  

 

Let et me know how you make out.  I'm curious to know who you are seeing as I may need a plan B.  You never know.  My some has some extremely serious complications stemming from having UC so that is why we are changing doctors, as RWJ has done all they can do for us.  It's too bad because they do have a good IBD department.

 

good luck

 

Allycat, dr.Milsom is no longer accepting insurance and doing mostly research from what I understand.  Bosworth was recommended by the transplant dr. And as well as someone else.  I never heard of Scherl.  I'm not sure if he is still there, or he might be at Columbia Pres.  I think Bosworth is high up on the food chain now.  I forget.  My head is swimming.  I've had a headache for a week and have spent the last 24 hours crying my eyes out.  I keep focusing on the worst.  Im a realist and I know that PSC can be deadly.  And I keep thinking I can not watch my baby die.  I can't watch him go through chemo or a transplant. I have a pharmaceutical background so I know the drill.  My head is in a bad place right now.  But some how I will come to terms with is horrible diagnosis.  I just need some answers and as we get set up at Cornell, I'm sure that they will come.

 

thank you for your input!

Originally Posted by Jeffsmom:

KS, my current surgeon is Craig Rezac at Robert Wood.  The new doctor that we have not seen yet is dr. Shukla.  We are seeing him next week.  And then in the afternoon we are seeing Dr. Bosworth.  Both are at Weill-Cornell.

 

 

My question about which Hospital was to the OP(Mikeey).

 

I have seen Dr. Shukla a few times before when he was covering rounds for my surgeon...see my previous post.  I thought Dr. Shukla was a really nice guy.

Originally Posted by Jeffsmom:

Allycat, dr.Milsom is no longer accepting insurance and doing mostly research from what I understand.  Bosworth was recommended by the transplant dr. And as well as someone else.  I never heard of Scherl.  I'm not sure if he is still there, or he might be at Columbia Pres.  I think Bosworth is high up on the food chain now.  I forget.  My head is swimming.  I've had a headache for a week and have spent the last 24 hours crying my eyes out.  I keep focusing on the worst.  Im a realist and I know that PSC can be deadly.  And I keep thinking I can not watch my baby die.  I can't watch him go through chemo or a transplant. I have a pharmaceutical background so I know the drill.  My head is in a bad place right now.  But some how I will come to terms with is horrible diagnosis.  I just need some answers and as we get set up at Cornell, I'm sure that they will come.

 

thank you for your input!

Dr. Scherl is a woman.  You can read her bio @ https://weillcornell.org/ejscherl

 

My surgeon was Dr. Michelassi; he is the Chief Surgeon for NYP Cornell.  He does take some insurances.

 

Originally Posted by Jeffsmom:

Allycat, dr.Milsom is no longer accepting insurance and doing mostly research from what I understand.  Bosworth was recommended by the transplant dr. And as well as someone else.  I never heard of Scherl.  I'm not sure if he is still there, or he might be at Columbia Pres.  I think Bosworth is high up on the food chain now.  I forget.  My head is swimming.  I've had a headache for a week and have spent the last 24 hours crying my eyes out.  I keep focusing on the worst.  Im a realist and I know that PSC can be deadly.  And I keep thinking I can not watch my baby die.  I can't watch him go through chemo or a transplant. I have a pharmaceutical background so I know the drill.  My head is in a bad place right now.  But some how I will come to terms with is horrible diagnosis.  I just need some answers and as we get set up at Cornell, I'm sure that they will come.

 

thank you for your input!

Aren't most cases of PSC slow moving?  Like many years or even decades before needing a transplant?  Is your son on Urso?

Allycat, I hope you are feeling better after yesterday's procedure.  I just ran over to Dr. Browns office to drop off films and medical reports.  I had to be in the city anyway.  OMG!  What a day.  I started out at Penn Station.  From there took 3 subways to get to Lexington.  Then had to walk from 68th and Lexington, all the way to York!  Then I had to get over to the upper West Side!  I couldn't figure out how to get the m66 bus which would have went cross town and across the park.  Couldn't find the bus going west, only east.  So back on the subway!  It was hot hot hot!  I'm not complaining, I love summer.  I was exhausted by the time I got back to NJ at 11:00 p.m.  My feet are still killing me!  Going back in on Wed to see Dr. Bosworth and Dr. Shukla.  We are going to get this all figured out! 

 

Stay well.

 

dianne

Dianne- I live on the west side and the buses that go east are on West 86th street off of Broadway and West 96th street off of broadway, don't know the numbers but I take them when I need to go to the east side. I really don't do well with public buses and subways.

My prayers are with you, hope all works out well.

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