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I've had my J-pouch for 15 1/2 yrs. Until this year I had been hospitalized a couple of times for dehydration, but it's happened 3 times this year. The intern was kind to point out I am a little older, 54, and not able to easily recover from getting dehydrated. I'm trying different things but I just seem to have a delicate balance with maintaining my hydration.
I believe I'm the oldest j pouch here: 31 years and going strong. Had a revision after 5 years to shorten the bit just above the rectum. My surgeon was Sir Alan Parks of St. Marks Hospital in London and he was the Daddy of ileo-rectal pouches. I've had a few issues, you can read about them in my posts. Good Luck! At the 7 year mark I discovered orabase protective pasted and have avoided butt burn since.
Hi Everyone.
I have had my s pouch since late 1981.
Done in Sydney Australia by a surgeon who was a friend of Sir Allan Parkes,now almost 33 years and so far so good, not too many problems but I try and look after myself.
I think one of the secrets to a sucessfull pouch is to watch what you eat and drink plenty of water.
Regards.
John.
22 years...unfortunately I am having it removed on 9/22 as I developed Crohns around 2008...all meds have failed...stricture at anastomoses, Crohns in pouch and fissures...I had a good ride and I'm devastated over losing it but it's time to move on with my life...no regrets though...jpouch gave me a good life while it lasted...

Hi, I don't come here often...it's been a few years. My pouch is 24 1/2 years old. Pretty much been ok and I attribute it to daily psyllium husk, a clean diet and daily exercise including yoga. I think completely emptying the pouch keeps pouchitis and other issues at bay. This is done with psyllium. Or you can take Metamucil.

 

Be well everyone.

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