So, who here is the longest term J-poucher? My first pouch started failing (leaking) at about 12.5 years, had it redone at 15.5 years, and I want to get the longest term possible out of the new one. How do I get there, and what is reasonable to expect? Thanks in advance!
Original Post
My pouch is closing in on it's 23rd year and it's done quite well. No additional surgeries or revisions. I have a friend who has had her pouch since 1985. She has to get regular dilations but she is doing well.

I don't think there is an answer for longevity. But I fully expect my j-pouch to last as long as I do.

kathy Big Grin
I've had my J-pouch for 15 1/2 yrs. Until this year I had been hospitalized a couple of times for dehydration, but it's happened 3 times this year. The intern was kind to point out I am a little older, 54, and not able to easily recover from getting dehydrated. I'm trying different things but I just seem to have a delicate balance with maintaining my hydration.
szeromambo i do not think vsl#3 would have caused your problems..it is adding good bacteria and if you have reactions to it (which is definetly possible)upon stopping it they should go away..when i tried it years ago it made me worse and i just could not get to even i bag..haven`t tried it since..

rebe
I believe I'm the oldest j pouch here: 31 years and going strong. Had a revision after 5 years to shorten the bit just above the rectum. My surgeon was Sir Alan Parks of St. Marks Hospital in London and he was the Daddy of ileo-rectal pouches. I've had a few issues, you can read about them in my posts. Good Luck! At the 7 year mark I discovered orabase protective pasted and have avoided butt burn since.
I had mine done in 1986 at UCLA. I now am looking at removal as it's done it's dash. It's been good to me though, causing no problems until a few years ago, I've sailed across oceans and done things I never thought I could. So thank you j pouch and dr fonkalsrud!!
Hi Everyone.
I have had my s pouch since late 1981.
Done in Sydney Australia by a surgeon who was a friend of Sir Allan Parkes,now almost 33 years and so far so good, not too many problems but I try and look after myself.
I think one of the secrets to a sucessfull pouch is to watch what you eat and drink plenty of water.
Regards.
John.
22 years...unfortunately I am having it removed on 9/22 as I developed Crohns around 2008...all meds have failed...stricture at anastomoses, Crohns in pouch and fissures...I had a good ride and I'm devastated over losing it but it's time to move on with my life...no regrets though...jpouch gave me a good life while it lasted...
Had my pouch for 32 years. Lots of dilations. Had adhesions take out. Had a fistula and abscess.
30 Blockages with ER Time. About
50 I stopped with hot water bottle laying upside down and massage.
Still coaching and teaching. Now lots of joint problems with arthritis.
Keeping my pouch long as I can!!!!
I've had mine for about 15 years now. 1st couple of years I had pouchitis but after that, it's been good! I eat whatever and whenever I want. Spicy food, nuts, seafood, alcohol, sweets, whatever. I also workout regularly and take vitamins and protein shakes. So far it's been good to me

Hi, I don't come here often...it's been a few years. My pouch is 24 1/2 years old. Pretty much been ok and I attribute it to daily psyllium husk, a clean diet and daily exercise including yoga. I think completely emptying the pouch keeps pouchitis and other issues at bay. This is done with psyllium. Or you can take Metamucil.

 

Be well everyone.

32 years and counting.  3 episodes of pouchitis but consider that not too bad.  Hoping for continued good health.  Been able to hold down a career as an airline pilot for the last 20 years.  Has not been an easy road but has made me a stronger person thanks to God's help.  Good health to all!

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