I must add that I am on Cipro right now because I have been bleeding a bit, but all else is the same as I described above.
Jan, I would also like to hear from you on this. What say you?
I have had a j-pouch for 16 years and have never tried lomotil.
I think it’s time to give it a try.
i read that it can strongly interact with alcohol. Does anyone have anything to say about that?
Can I have a beer with my dinner or is it off limits?
Lomotil doesn't have a particularly strong interaction with alcohol. There shouldn't be a problem having a beer. Flagyl sometimes interacts very strongly with alcohol, but you didn't ask about that.
I take Lomotil at bedtime and before getting on a boat, and that generally completely eliminates the most inconvenient bathroom visits/needs (while sleeping or far away from decent bathrooms). I would never use it to change the consistency of my stool - psyllium does a better job for me with that.
Thanks for the feedback, Scott.
Can you tell me more about how you use psyllium?
I've been doing this for 16 years, but never really had much advice. I'm currently train for a 100-mile trail run and I'd really like to get a little more control over things...
I use powdered psyllium. For years I just used Metamucil - one full dose at breakfast and another at dinner. More recently I've been mixing Metamucil and Konsyl 50/50. If you do a search on this site you'll find lots of other approaches.
Hi my name is Cindy I'd like to respond about the psyllium husk. I've been using psyllium husk for the past 10 years. I swear by it, has save my life pretty much. I get it from the vitamin shop 1 teaspoon before breakfast lunch and dinner and I have formed stools. when I don't use it which is very rare, it makes a big difference. You do have to mix it with water about a half a cup, mix it quickly and then drink it quickly otherwise it gets real thick and gross. I also take Imodium for tablets a day daily . I get that from Costco generic it's way cheaper than the brand-name.
Hi All, I take immodium 2x/day (once in the morning and once around dinner time). I have lomotil, but rarely use it. I have not done psyllium husk, but I know many other J-poucher's do this. Immodium stays in your body for about 10 hours and that is why I find 2 tablets (which I get from Costco) a day sufficient.
I have taken low doses of lomotil on and off for 14+ yrs for pouchitis symptoms. Low dosage for me = 1 or 2 tabs at 2.5mg. For past 5 yrs I have used it more regularly and at higher doses = 2 tabs in AM and 2 before bed. In addition to my Cipro treatment, this helped control frequency. Lomotil at these higher doses occassionly left me feeling tired mid-afternoon - something alleviated with a 15 min snooze.
Bigger picture for me: ~6 mos ago I developed fairly severe dermatological issues with bright red, itchy, scaly rash on both hands and wrists. Itchy like poison oak, but without the oozing sores. My wife (an internest) found an article on acquired dermatological sensitivity to lomotil in users of 5+ yrs. I quit the lomotil cold turkey and symptoms have improved a LOT. Not gone yet, but I think this is the cause. After reading Jan's comment about the atropine component, I now wonder if Immodium would be tolerable?
Darren, it’s certainly possible that the rash was from atropine (rather than diphenoxylate), or even that it was a diphenoxylate reaction that you wouldn’t get from Imodium. It’s probably worth trying the Imodium, IMO, though there’s some small but hard-to-estimate risk of it exacerbating the rash.