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I take it anywhere from 1 to 3 times a day. This is pretty recent. I was on Tincture of Opium for 14 years. It worked great, but, in my opinion, due to politics, I was taken off of it. I took that about 3 times a day as well. Anyway, the docs tried Imodium first and it shut me down within a week. I then went on Lomotil. It works a little slower than the Opium, but I am happy with it.

Immodium shut me down in that my pouch just quit performing. I could not pass stool. There were literally no spasms to tell me I had to go. I would try to go, bit it would have involved massive straining and I know that is not good. I already have issues (pouchitis, cuffitis, possible stricture, small hernia) and knew straining would just make those things worse. I was using enemas to pass stool and even that was a challenge because of my "stricture."  I put stricture in quotes because we are not sure that is what I have. It comes and goes and I hear strictures do not do that. I finally got mad and dropped the Immodium and went back on the opium as I had some left over. Once I told the doctor, she was so relieved I had kicked teh opium habit, she was more than happy to prescribe Lomotil.

@kta posted:

Immodium shut me down in that my pouch just quit performing. I could not pass stool. There were literally no spasms to tell me I had to go. I would try to go, bit it would have involved massive straining and I know that is not good. I already have issues (pouchitis, cuffitis, possible stricture, small hernia) and knew straining would just make those things worse. I was using enemas to pass stool and even that was a challenge because of my "stricture."  I put stricture in quotes because we are not sure that is what I have. It comes and goes and I hear strictures do not do that. I finally got mad and dropped the Immodium and went back on the opium as I had some left over. Once I told the doctor, she was so relieved I had kicked teh opium habit, she was more than happy to prescribe Lomotil.

Is everything working better for you now???

@RondaC posted:

I am glad there is no long term side effects. I was concerned about that.

ALmost 4 years ago, I was too! I understand your concern, I was in your shoes about 4 years ago. 4 years later, everything is fine! If you feel you do not need it anymore, definitely lower the dosage, but as long as you need it, its fine. I confirmed that with a Surgeon and Physicians assistant. I have also talked to other people that have been on it for years too. You are fine

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