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Hi guys,

I have been having ongoing pain in my right upper quadrant where my gallbladder used to be. It was removed in 2013 and the pain started shortly afterward.

I put it down to phantom pains, then hernia pains and then hernia repair pains but it has just gotten worse.

Over the last 2 yrs my liver enzymes started to rise (3xs normal) and then an MRI showed it to be 50% larger than normal.

Enter a very kind gastroenterologist (my first in 30yrs) who did an ultrasound with his brand new 3D machine that showed a cyst (tiny) and nothing else.

He believes that something is blocking the duct and that my liver is not emptying but building more and more bile that is backing up.

Next week, they are doing an endoscopic ultrasound (I had never heard of it before) under general anesthetic (not pleased but no choice)...we should have an answer, I hope, after that.

Any of you ever have an endoscopic ultrasound? If so, how did it go? What was found and what was done?

Thanks, I am a bit concerned.

Sharon

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Sharon, hopefully this is just a a small stone or cyst blocking a duct. You have had enough weird stuff going on with you.

PSC is primary sclerosing cholangitis, a liver disease that advances to cancer. It is associated with UC.

I had not heard of this ultrasound procedure (EUS), but it appears to be similar to ERCP which uses x-ray. When my liver enzymes were elevated they used MRCP for diagnosis. It was completely noninvasive.

https://www.pancan.org/facing-...opic-ultrasound-eus/

Jan

Thanks Jan, I saw the anesthesiologist yesterday and I am bit reassured.

He did not answer the question...if they find something while they are in there, are they going to do anything about it??? Or just take a picture of it?

I am not a huge fan of general anesthetic and even less of I.V.s so if they have to put me under, at least do the work while you are in there...hoping that they do or can clear the duct....

Jan, what did they do for you when your liver enzymes rose??? Did they find the cause and did they find a treatment?

Thanks and take care

Sharon

Gee, I can’t imagine what they could do Sharon. Also, I did not think they use general anesthesia for this, just sedation.

When I had my MRCP it ruled out bile duct enlargement, so PSC was not an issue. I was then diagnosed with non-alcoholic fatty liver disease. At that point I had to stop taking NSAIDs and was started on biologics for my enteropathic arthritis. My liver enzymes gradually came down to normal levels and that was that. So, I was lucky.

Hope you are lucky too and nothing serious is found!

Jan

Thanks Jan,

I had a specialized MRI done in Dec that showed that the liver was 50% larger than normal and that coupled with the enzymes that were 3xs what they should be they sent me to the hepatologist who did the 3D eco...Nothing other than a 16mm cyst showed and enlarged ducts that lead him to believe that something is in there...also there is an artifact that looks like an uninflated balloon...

Wish me luck...

Sharon

@skn69 posted:

Thanks Jan,

I had a specialized MRI done in Dec that showed that the liver was 50% larger than normal and that coupled with the enzymes that were 3xs what they should be they sent me to the hepatologist who did the 3D eco...Nothing other than a 16mm cyst showed and enlarged ducts that lead him to believe that something is in there...also there is an artifact that looks like an uninflated balloon...

Wish me luck...

Sharon

What is the plan now?

@Jan Dollar posted:

Sharon, hopefully this is just a a small stone or cyst blocking a duct. You have had enough weird stuff going on with you.

PSC is primary sclerosing cholangitis, a liver disease that advances to cancer. It is associated with UC.

I had not heard of this ultrasound procedure (EUS), but it appears to be similar to ERCP which uses x-ray. When my liver enzymes were elevated they used MRCP for diagnosis. It was completely noninvasive.

https://www.pancan.org/facing-...opic-ultrasound-eus/

Jan

PSC doesn't always turn into cancer., but it does increase chances of needing a liver transplant

Last edited by Pouchomarx

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