Limited Options

I would try oregano oil, it is a natural antibiotic and I used it for several months instead of cipro. Buy a concentrated brand like do-terra or joy of mountains, high quality oils and take 5-6 drops 2X a day.

Thanks for your reply clouseau. I think I will give that a try. I don't think the doctors believe in natural remedies but I think they can be very helpful.

I generally think natural remedies are worth a try, as long as they don't interact with any of the medications one's currently taking. After all, many of the active substances in the medicines we use are derived from plants!

ASIDEfrom the trying of oregano oil you could also try other antibiotics like tinderbox and reflex..xifaxin there are others as well..

iam also at this time with a chinese dr. trying goldenseal like oregano oil has antibiotic properties..will see if that gets me off of antibiotics for a time..right now with his instructions i am just adding goldenseal to my regular antibiotics..i am doing it with advise from this dr. so i am starting more slowly...i started on 1/2 goldenseal now up to one whole capsule ..but as i said still on my rotating antibiotics..

If none of the other antibiotic candidates works, you could try a combination. I'm currently on Cipro and Flagyl (both modest doses) when neither would do the job alone. Perhaps Flagyl at a low dose would be okay for you. Other options include Augmentin, doxycycline, Tindamax (not tinderbox), and a few others.

Thanks for your replies people I am due to see my Gastro soon so we will have a discussion about these options. I am currently on Amoxicillin 500 mg x 2 daily and have probiotic yoghurt in between these doses. The yoghurt seems to be helping. It's all trial and error I guess.

If the cortenemascwork (which they won't allow perpetual use due to thinning of mucosa over time) would they consider allowingbyountonadd Entocort/Budesinude? It is an oral, supposedly non or less systemic, that doesn't release until it gets near the end of your small bowel, hence the pouch doing the bulk of the absorbing if it, without the thinning risks posed by cort enemas or suppositories. Typically it is a drug they try to wean you off of, but it is currently in trials as a maintenance drug for UC and I have been on half the max dose for about 3 years now, with minimal side effects.

Other options if that fails are other ZuC-type drugs like penates a, Immuran, etc. and /or also various biologics.