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How long are you holding it now? Are you on a stretching schedule? Mine was really bad the first week I started to hold it through the night. I was also put on Bentyl and it helped a great deal with the movement, pain, gas, etc. It gets better. I think mine was about 3 months post op it was easier but do not suffer, always talk to your doctor about things to take in the process.
Oh I know how it is! My issue was gas. I had horrific gas straight out of surgery so they thought I had pouchitis. I tried gasx and all that over the counter stuff and nothing helped. Every week I had to add an hour to holding and it was awful if I was cramping or had gas but I tried to hold out since I wanted my pouch to stretch. Bentyl helped a lot, not sure if you are in the US but that could be an option for you. Another one is Levison (sp). Call your doctor though for sure! I had to call mine every week to check in and report.

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