J-pouch folks, I am having the worst time at the moment, not because of any bowel-related problems, but the absolute, astonishing and incomprehensible stupidity and negligence of some people at my GP (primary care) clinic.
Six weeks ago I was suddenly told in a very unpleasant phone call from an admin staff member that my appointment that afternoon was cancelled and I was no longer to have any appointments there.
In other words, I was expelled!
To no avail, I asked why, what is going on. No answer. Who authorised you to cancel my appointment. No answer.
As you can imagine, this was beyond upsetting. I was getting on well with my doctor, no disagreements, in fact she had gone out of her way to help me organise an obscure treatment. I thought all was well in GP land.
And what was my crime, you ask? (But criminals have to be informed of their changes, so I'm treated less well than a criminal.)
Well, you will be astonished to hear that ... I hadn't done anything wrong and there was no reason for me to leave. They invented the whole crisis and whipped it into six weeks of absolute hell for me FOR NOTHING.
The actual problem was that my doctor, who is a registrar, was feeling a bit out of her depth with my dysautonomia and wanted me to transfer to another doctor. Should have been fixed by a simple conversation between us, right?
But no, some dill, who I've never even spoken to, told everyone firstly that I had left, and secondly that I refused to see a male doctor. Both of which he had invented after misunderstanding a conversation with my carer and were completely incorrect.
We tried repeatedly to correct this misinformation by contacting the senior medical staff. I tried to speak to my doctor. No go.
Turns out that the management has a policy of ... wait for it ... never communicating directly with patients. So the dill was speaking for me, instead of me speaking for me.
We had to contact the chairman of the board via another organisation. And oh suddenly they can send us a letter.
I am so furious. Had I been a patient with depression or without family support, goodness knows what would have happened.
Oh and they haven't even bl**dy apologised.