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read your thread jan and seems like you had some pretty ugly stuff going on yourself..hard to give our site "go to person" any advise but i sure feel your pain..

jan i do not know if your type arthritis but i know now of a person who had such severe arthritis she thought she would be in a wheel chair(she was a dancer by profession) she turned down drugs and instead did a very serious diet life change..it was stricter than one i put myself on but she is completely cured now and is a wonderful zumba teacher here in santa barbara...anyway i since have heard more relationships between arthritis and diet and exercise..it has worked for others as well ..not everyone but its another avenue besides drugs..just thought i would pass this on and let you know how much i appreciate your giving kindness to others with your thoughtful and knowledgeable suggestions and i hear you too!!
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Thanks for the ideas. Yes, I have heard/read about diet and arthritis. Actually, it is pretty close to what is recommended for controlling j-pouch issues, a low carb diet. I do my best with that, especially since I also have type 2 diabetes (which is diet controlled- no meds now).

My arthritis is enteropathic arthritis (the type of spondylitis that is IBD related), so it is inflammatory. It also has caused accelerated osteoarthritis changes. I've been on biologics since 2005 and that was the first time i had any issues. I even had some surgical procedures without incident while taking them. I'm hoping it was just a fluke. They did discontinue my beta-blocker, since my blood pressure was good after it came back up after the sepsis. That probably was a big factor too.

I am always reading the journals, looking for new insights, so maybe more information will come along regarding diet.

Thanks again,

Jan Smiler
jan for me and my issues i found if i did not not eliminate all simple carbs as my goal i was not as successful as eliminating some..i do eat fruit as i have said in other threads..and i avoid processed foods..elaine gottshall in her book scd diet best describes why fruit is okay and she does allow honey and some cheeses(hard) you probably will understand it easily i just remember the bottom line.. we accept diet as a control

and preventative in so many illnesses but i think more and more is coming out about its cause of more and more issues..you know 4 or 5 years ago even dr. shen was not talking about it as he does today..

on the other hand i actually followed the scd diet for two years to the hilt..i mean no cheating nothing...i was using it for the run away colitus i had..i know it has been successful for many colitus suffers and i got to know them on sites but it did not work for me..ironically it is working for present bacteria overgrowth issues after operation..so its a bit tricky for sure..
Couldn't agree more. Everything is connected, I'm sure. If only there was some sort of consistency from person to person, or even within the same person. None of any the treatments is a cure, just a treatment to help control disease and reduce flares.

I am not naive enough to expect a life without any disease activity. But, I'm always open to improve things, and I know dietary changes take time to show an effect. I know some AS sufferers who function well with diet control only. I hope to keep working on that, as I have made big diet changes over the years. I'm not ready to go back to where I was before biologics though, since they really improved my function in a significant way.

Jan Smiler
I lived on a somewhat modified version for over 20 yrs...I did the fit for life diet eating mostly fruit in the morning, animal protien (fish or chicken) and veggies for lunch and dinner. Very little carb or milk products and no processed or refined foods...usually I allowed myself 1 carb day a week, on my day off, where I ate whole grain bread or pasta...it was my 'pouch logic' because I couldn't intubate my k pouch in public so I needed to be very low residue.
I suffered from almost no arthritis-type problems and no pouchitis...now I am chomping carbs constantly...my weight is up, my joints are killing me and I ache all over.
Is it related? Probably but carbs seem to be a drug to me and once on them I find it difficult to cut them out.
I have got to start soon because this pain is awful.
I guess that it can only make things better if I kill the carbs.
Sharon

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