I am new to this forum and from the U.K. and looking for some feedback.
I was diagnosed with UC in 2007 and underwent an emergency operation in 2017 to remove my large colon after it perforated. I was left with a temp ileostomy and my rectal stump was still left in place. Fast forward to January of this year and I had J Pouch surgery to remove the rectal stump and put a JPouch in its place. No temp loop ileostomy was given because whilst the surgeon tried to, everytime he stretched it, it would pull my pouch out of place. So I have been using a pouch which has been healing for the past 10 weeks.
I currently (after scouring the internet) have realised I have pouchitis. I am due to have a sigmoidoscopy on Wednesday of next week to confirm this but want to ask my surgeon if he will remove the pouch and give me a permanent bag now. My symptoms are that I haven’t slept more than 3 hours a night in the last 10 weeks, hardly eat (coming up for 2 stone weight loss) nightsweats when I do sleep, tailbone pain, dizziness, constant bowel movements and generally cannot leave the house. It’s totally affected my mood now as I was previously so positive and loved living life. I’ve hated everyday of the last 10 weeks and even lost my relationship.
My question is to see if anyone else asked for this so soon and if I’m likely to get it done so soon? I can’t even go back to work which soon will have financial implications for me if my surgeon doesn’t agree to do the operation for me to allow me to recover and get back.