hello , im not really sure were to go or who to talk to about this stuff so im posting on here , i feel like after surgery most of my doctors abandoned me. i had my takedown surgery im sept 2016 then i had my jpouch hooked up in feb 2017 it was a 2 part surgery. it started out okay but soon after it lead into using the bathroom alot , leaking in the middle of the night and severe body pains. was diagnosed with pouchitis and given cipro 500mg for 2 weeks , felt great , then soon afterwards felt sick again . was given a low dose for a few months still worked but ended up getting super severe body pains. i cant really function im in so much pain , my body aches 24/7 its hard to work out or do much . i feel as though i injure myself very easily , by carrying groceries to lifting weights. been dealing with this pain for a few years now . my mom passed in sept 2018 and i started to eat whatever , mind you im not really sure what i should be eating because no matter what my stomach doesnt feel great. now a year and a half later i have extreme pressurei n my stomach always and it feels as though my diaphragm is aching and having problems letting me breathe , like something is wrong in that area , sometimes i get pvcs when my stomach is a mess , it feels as though my stomach and chest vibrates and im over full 24/7 when i dont even eat much anymore. im tired of going to the doctors they dont really know whats wrong. hoping someone can help or give some advice . sorry for the long story tried to sum it up.

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JDM, it sounds like you’re having an awfully tough time. You probably need to find a doctor you can trust and communicate well with, even though you’re tired of it.

I’m a little confused about what happened with the Cipro. Are you saying that you think it caused your body aches, and that these have continued even though you stopped the Cipro?

sorry guys i may have wrote alittle eratic not feeling to great today alot of pressure in stomach hard to breathe , been having these feelings for awhile now. Im not sure if the cipro caused it im just not sure why im having such severe body pains even in my chest. i can carry groceries in  and it feels like i hurt myself the next day its strange , my chest pain is bad and hurts to the touch sometimes , been checked for arthritis and what not , just kind of fed up at this point. There arent many good doctors left in my area so its been rough . my current gi is super nice but he doesnt know much about the jpouch surgery  so after i had it done hes alittle wary of treating me , he did fill me a script for cipro in the meantime. ill have to look into probiotics more i was taking a store brand one for awhile but didnt notice much difference. I honestly miss my bag a this point , thanks for the responses ill try that diet.

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