Hello Everyone. I am a 60 year-old male and after approximately 3 years of severe chronic ulcerative colitis and failing on 6 or 7 different drugs, my entire colon was removed. I am now three months post-surgery with my ileostomy which is apparently Stage 1 of a three stage procedure called a Total Proctocolectomy with J-Pouch Reconstruction. Stage 2 has been delayed because of COVID. I am concerned about the future 2 stages, and I was hoping to get some advice from people who have been through the 3 stages of the procedure and can tell me what I might expect and maybe answer some questions such as:
How old were you and how was your overall health when you had the surgery? How long and how bad was the recovery period between the Stage 2 J-Pouch construction surgery and the Stage 3 attachment surgery? How long have you been living with the J-Pouch Reconstruction? How many bowel movements a day do you have and has it decreased over time? Can you control them (ie. get the sensation with enough time to find a toilet)? Or do you have to wear adult diapers? Has that improved over time? Have you had any/many complications? If so, what were they? Do you feel like your quality of life has improved measurably beyond life with an ileostomy? Would you do it again? I really appreciate any responses.
This is my second attempt to post this. I thought I posted it earlier, but now I can't find the post and I never received any notifications, so maybe I didn't do it correctly, but if anyone has seen this previously, please let me know how to find it again. Thanks all.