I have had a pouch since 2001. I had a refractory case of UC in 2000 which responded to nothing, never had remission, colon ruptured, basically went from diagnosis to emergency surgery in less than a year. Had successful surgery in 3 stages. I initially struggled with chronic pouchitis requiring long term Cipro/Metro, but have not had a flare up in 8-9 years. Had a routine scope yesterday and what was characterized as moderate serpentine ulcerations in the pouch inlet (proximal limb of pouch) were detected and biopsied. The rest of the ileum, the rest of the pouch, and the rectal cuff were all normal in appearance. The doctor said theres always a possibility of Chron's even though the original diagnosis was UC. I am awaiting biopsy results but am terrified at the thought of losing my pouch if this is in fact Chron's or worse. I have had zero symptoms of pouchitis and no evidence of blood in my BM's. Does anyone know if pouchitis can present cliinically like this without symptoms? Anyone with a mature pouch ever had finidngs like these? Not sure how long it will take to receive biopsy results, but needless to say I'm anxious and praying that this is not the beginning of the endo of my pouch.
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