Skip to main content

Hello back in 2013 I had my surgery for the j-pouch, prior to this the dr took biopsy's of my small intestine to test for crohns which came back negative, now today I had to get an endoscopy and a j-pouch scope (not sure what that was called), the dr found three ulcers in my j-pouch which he had told my husband i could have a mild case of crohns and took biopsy's to test for it. Im just confused as to how I could test negative three years ago and some how have it now? I wanted to see if anyone has had this experience or if this would more then likely not be crohns? any advice is appreciated! 

Original Post

Replies sorted oldest to newest

Hi. I was diagnosed with Crohns a year after surgery. Since I'm allergic to Sulpha and Tetracycline I had limited options at the time (1994). I tried acupuncture and it has kept me symptom free since then. I've had pouchitis a few times over the past 22 years but not more than a handful of times. Don't worry - if it is Crohns you will be okay!

My Mom was a nurse and in the medical community there were good things being said about a Chinese doctor (who also had his M.D.) in my city. I went to see him and he treated me with acupuncture and I still go regularly over 20 years later. TCM (Chinese Medicine) follows a very different rationale than western medicine. I don't know how it works, it just does in my case. If you are interested I'm sure you could find a credible doctor of TCM in your area. Don't go to a physiotherapist who does acupuncture, go to a Doctor of Chinese Medicine. Its worth a try if you're up for it.

Originally Posted by 1993SPouch:

Hi. I was diagnosed with Crohns a year after surgery. Since I'm allergic to Sulpha and Tetracycline I had limited options at the time (1994). I tried acupuncture and it has kept me symptom free since then. I've had pouchitis a few times over the past 22 years but not more than a handful of times. Don't worry - if it is Crohns you will be okay!

I'm doing acupuncture as well and am wondering how frequently you go?

 

I know it's different for everyone but I only feel it truly works for my flaring of pouchitis or really any symptom ((I have crohns now) when I go 2x/week. of course I get remiss when I'm feeling good and don't go for prevention treatments. Acupuncture is just wonderful!

Last edited by SarahXYZ
I also have had the best luck with acupuncture and chinese herbs. It really does depend on the knowledge of the person your seeing though. I spent a crap ton of money and went to an amazing chinese medicine guy and felt bettee than i had in years. 3 times a week treatments along with tons of herbs. Unfortunately i couldn't keep up with the cost and less i went the worse i felt. Ive tried cheaper options but they didn't have the same affect on my chronic pouchitis.

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×