I'm just writing because I am so very frustrated!!! In 1992 I was diagnosed with ulcerative colitis and suffered 5 years with the disease. Of course there was all the fun that comes with that disease- prednisone, Asacol, 6-MP, pain, not to mention the copious amount of trips to the bathroom!!!
In July 1997 I had Step 1 of my j-pouch surgery and in October 1997 I had my reversal. It was good in the beginning, but as time went on I had complications. I had fistulas and the biggest problem was my anal stenosis. I kept going for dilations, but time in between each procedure was becoming less and less so it was recommended I seek out surgery for a possible j-pouch redo.
So on January 10, 2018 I had my j-pouch redo surgery!! I am feeling so upset that I would have to endure this hell twice in my lifetime! I would love to know if others have had this experience? Also, this time around I am having THE WORST ostomy leakage issues.
I guess I just would like to hear from someone who can provide some words of encouragement because at this point I'm feeling depressed!