J-pouch flopping over on itself | The J-Pouch Group

Mary SchneiderMember

Has anyone had this problem or know about it? Dr B and Dr Shen at the Cleveland Clinic says this may be the reason for my constant water diarrhea, which would necessitate a new j-pouch. Argh...

2/9/156:33 PM

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TE MarieMember

Did they discuss having minor surgery to suture it in place or a pouch advancement to make it smaller? Can they make a new jpouch for you? Have you discussed a K/BCIR pouch? I don't have one but several members have gone to those.

Good Luck

2/9/157:05 PM

Jan DollarModerator, RN, retired

I have heard of this, but mostly associated with an s-pouch. i have not heard of non-surgical options for this. I have read about pouch revision as opposed to pouch redo, but I am sure it depends on the health of your current pouch and the cause of the defect.

Jan

2/10/1512:23 AM

skn69Member

There are lots of this type of problem with k pouches...when they 'fall off of the wall' they can flop or twist over.

I had mine tacked up to the wall again because it was twisting.

It wasn't the first time either... they did it with a laporoscopic procedure...not open surgery.

There are a lot of solutions that may be possible through laporoscopy without needing either open surgery or full blown pouch revision.

Ask your surgeon or have him refer you to a lap specialist.

Sharon

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