I’ve been going through a rough patch mentally in regards to my pouch, and wanted to know how everyone else manages to cope. I had my pouch surgery two years ago after many failed medications and was kind of pressured into it since I was really underweight and honestly just very sick. But the reality of this surgery hadn’t set in until a few months back. Does anyone get overwhelmed knowing you can never go back to your old body? That if the pouch fails that a permanent osteomy is the only thing left? That it can have such a grand variety of troubles? Some nights my mind just won’t stop jumping to the worst possible outcome and every slight change my pouch has sends me into an anxiety frenzy.
For example, last night, I had to use the bathroom during my sleep, which never happens. Needless to say I woke up today and have been crazy anxious. Or when my pouch is slower than usual I’m on edge about it all day. And I know that pouches have their good days and bad days but it’s still scary. Crazy to think I had even worse variability and GI issues with a Colon and wasn’t half as worried or anxious as I am now!
So how does everyone else cope with accepting this life altering surgery? I’m happy with my pouch and grateful it has given me a normal life for the past two years, but I fell as if I’m constantly wondering how long it’ll last… Anyone feel this way?