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I just got diagnosed a few days ago with prostate cancer, Gleason score of 6-7.  I have had the j-pouch for a little over 20 years and have had my issues with pouchitis, etc.  I'm 64 years old, and I think in reasonably good health otherwise. 

Has anyone here had recent experience with the various treatments?



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Have you been able to identify a doctor who can remove the prostate?

My father was diagnosed a few weeks ago. The cancer hasn’t spread, but he needs to do something  soon.

He wants to pursue the prostate removal, but his doctors in Dallas don’t have experience with it in J-Pouch men and don’t want to do it.

Thanks for your help!


Hey @sahbumnim! So sorry for your diagnosis! Trust you’re on a platform where you’re not alone!

My father was diagnosed at the end of June! After searching and being referred to numerous doctors, we found a few! The one we went to and had great success with was Dr. Jeffrey Karnes at the Mayo Clinic in Rochester, MN!

When we spoke to him in August he admitted prostatectomies in J-Pouch patients weren’t all that common, but mentioned he had actually successfully performed 2 in the last 6 weeks (look at God’s timing!)! We knew right away this was our guy!

My father gets his updated PSA in 35 days or so (to confirm he’s cancer free), but we’re praying and claiming he is in fact cancer free now!

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