Hi all! I just joined this forum. I have never sought out advice regarding my disease - but I think it is time. I suffered with what they said was Crohn's for 20 years (I'm 32) and in July I had my J-Pouch surgery. My small intestines has always been healthy and the Pathology when they took it out said it looked like Colitis. Regardless, I had my colon removed. I am almost four months out from my take down surgery. The reason I had the surgery to begin with was I had taken every medication and NOTHING helped.
At this point, I have ok days and really bad days. I have been on Cipro for an entire month - I have had some bad pouchitis and everytime I come off the Cipro it comes right back. When I am on the Cipro I feel ok - I have solid stools - but I still go 12-20 times per day. I feel like I cannot empty my pouch completely. I cannot sleep though the night - I am up almost every hour (on a bad day) or at least 3 times a night on a good night.
Has anyone else suffered like this? I am still waiting to feel glad I went through with the surgery.