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Hi!

I had my last surgery 2019 and my pouch has worked great all this time.
In september I went to a naprapath and also got suggested supplements but also Chinese herbs. The course of the herbs was around 6 days.

about 2 weeks after I started getting lower back pain but it could also wander up to my shoulderblades as well but mostly lower back down towards my pelvic but the backside (mostly only) if that makes sense  

its like a crampy achy feeling that comes and goes and can be present for hours but then it can be gone for a short time and then go back.
i wont say my toilets visit have increased no blood not always loose stool (some time its more on the more solid side)  

i have a lot of gas but that could be due to some diet changes like more vegetables/legumes/fiber  

now Am I getting a little more stomach ache and a lot of back pain. Its such a pain that when it comes you almost need to rock back and forth  

have someone experienced something similar? A month with ”only” back pain could it be that the inflammation or pouchitis started this way?



im so scared and worried and can see all terrible horrible scenarios what it could be 😢


Best regards

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I dont think its gas because I often have gas problems but thats usually fine especially when I can let it out. This feeling is like an intense ache that comes and goes in waves (mostly on than off though). I dont know any better way to describe it for my self than when you were younger and had a stomach bug or like a flew and your stomach felt off .. just the difference that almost all pain is in the back down towards my bum. I’ve already been at my local doctor just to see so it wasnt my kidneys but it wasnt….

Dang, I was hoping it was a simple thing.  I once had constant pain that moved around my chest and abdomen that I was convinced it was a big problem.   I went to the doctor and had all these scans (because I had colon cancer in the past) and they ended up telling me I had acid reflux. 

I have had intense lower back pain before but never for extended amounts of time, and usually it was associated with menstruation. I have had dull lower back pain from pouch inflammation, but it didn't persist for a long time or turn intense (knock on wood).

I bet someone on this forum has experienced what you're feeling and can give you some guidance, but in the mean time, I'd keep after the doctor until they help you figure out what it is, not just what it isn't, and provide you with relief.  That sounds miserable.  If you are taking pain medication for this, I have heard through this group that NSAIDs can increase or cause pouchitis, so it might be best to avoid those. 

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