Is it possible to get Pouchitis before your reversal?

PBMember

Dear all,
Brand new member - greetings!! It's been great to read some of your posts, and I'd be over the moon if my question gets a response of a similar standard.

So I had my Jpouch created in May 2012 and am currently waiting for my take down operation - date still to be set.

Recently, I have noticed what I guess is the cramping a lot of people talk about. But every few weeks now I have a lot of liquid pass from the pouch, and about a month ago I noticed a bit of blood - which has returned again today. The blood is definitely from inside.

I have emailed my surgeon, and am seeing him on Feb 11 anyway to discuss the Take Down. I guess I was curious if anyone had any thoughts on my issue? I wondered if it could even be Pouchitis - is that possible before the take-down?

Look forward to you thoughts.

A.

1/28/137:13 AM

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Jan DollarModerator, RN, retired

Short answer, yes, and a prolonged diversion could even cause it.

The blood could easily be from cuffitis though. Something to ask about with your next appointment.

What is the reason for such a long delay for takedown?

Jan

1/28/134:01 PM

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PBMember

Hi Jan,

Thanks for your reply. I shall definitely ask.

I have a golf ball sized haematoma behind the pouch. It came from a bleed I had after the pouch creation operation. Annoyingly it wasn't spotted at the time, became a hematoma and I only discovered it myself when I ended up in hospital months later after it became infected.

My surgeon has so far wanted to give it time to degrade on it's own accord. I frequently have scans to check it, and it is reducing, but just at a painfully slow rate. I'm at a point now where I'm asking what else can be done, because I've been told waiting for Hematoma's to go can even take years...

Frustrating... but that's how it is at the moment.

Thanks again for your thoughts.

A.

2/1/135:51 PM

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Jan DollarModerator, RN, retired

Yeesh! I'd be begging for it to be drained months ago...

Jan

2/1/139:06 PM

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