Hope everyone is well. I've read so many posts but I never came across a post that had my very unusual symptoms. I'm hoping that I'll get some advise/ help. I had UC and my colon removed. Just had my take down surgery in May. I've had complications ever since. My 2 most issues are the reasons I'm here today asking for advice.
1> My gas pain is very intense. The only way I can describe it is that it feels like contractions. It's like a wave of sharp pressure and pain. It's loud enough that people around me can hear it. The only way it will stop is if I lay on my side and release it. But of course thats not the only thing that comes out. Doctors just prescribe me simethicone but it doesn't help AT ALL. Nothing works. The pain and pressure is unbearable. I can't sit for long periods of time nor can I walk. As soon as I lay down the intense pain starts, slowly building, coming in waves. I hardly eat. I'm down to 2 meals a day. I keep myself hydrated. My diet is mostly brown rice and baked potatoes. No processed foods. Whole wheat and plant based diet only.
2> This may sound weird and tbh, I'm embarrassed to even talk about it but nobody can give me any answers. I'm hoping someone here can help me. I'm unable to sit on the toilet and have a proper bm. The only way I can have a bm is to lay on my side and that's when everything comes out. So I literally have to wear a diaper all day long. No matter how long I sit on the toilet and no matter how strong the pressure is. Nothing is coming out until I lay down. This also means I have incontinence, especially at night. It's so exhausting and frustrating to have to wake up and clean myself all night long.
Please help me with some info or any guidance.