My take down was in Aug 2018 three step surgery  ( IPAA ) . Suffered with pouchitis and cuffitis after surgery till Aug 2019 when I went in a fecal transplant study which finally settled everything down . Before that I was on Cipro/ flagyl for a few months and they did help but every time I went on them within a few days  I started getting heart palpitations which scared me more then the pouchitis. 
Since late September 2019 I haven’t had any major issues I still have at least 15 bm a day but none with pain . About two weeks ago I started up with gas spasms which are extremely painfully and more frequent bm which on average are over 20 a day. Pain in my lower back and my arthritis has gotten worst with my whole body sore and stiff . Just wondering instead of the antibiotics has anyone had any luck with any natural treatments or supplements. I know it doesn’t always work I tried them all with my UC just wondering if I can avoid the antibiotics now or should that my only step. 
Thanks 

Original Post

I think VSL #3 kept me off antibiotics for about a year. Some people do get benefit from an extremely low carbohydrate diet. Have you always had Cipro and Flagyl together? If so, only one of them is likely to be causing the problem, but it’s awfully hard to tell which one without trying one alone. I’d guess Cipro is slightly more likely to cause that side effect than Flagyl, but it’s not a listed side effect for either drug.

Well I’ve just started taking Blackmores Probiotics.  I’ve got Cipro on hand if I need to take it. I only take it if I need it. (two courses since Christmas). And I have Alprim for UTIs if i think I’m getting a bladder infection.  Other than that I try basically staying on a gluten free diet. I think everyone is different. Sometimes I think if you are really unwell you just have to take antibiotics. Maybe try and get fit in your own way and build up your immune system. 🌷🌷👍

Scott F posted:

I think VSL #3 kept me off antibiotics for about a year. Some people do get benefit from an extremely low carbohydrate diet. Have you always had Cipro and Flagyl together? If so, only one of them is likely to be causing the problem, but it’s awfully hard to tell which one without trying one alone. I’d guess Cipro is slightly more likely to cause that side effect than Flagyl, but it’s not a listed side effect for either drug.

I spoke with two different pharmacist and they both said it’s the flagyl that can cause heart palpitations. I asked my doctor and was told no it’s shouldn’t . But all I know was after two days tops on flagyl they start up . 
I am taking probiotics everyday and as of Monday morning I am eating only liquid and soft foods . Will try it for a week or so . 

Francesca posted:

Well I’ve just started taking Blackmores Probiotics.  I’ve got Cipro on hand if I need to take it. I only take it if I need it. (two courses since Christmas). And I have Alprim for UTIs if i think I’m getting a bladder infection.  Other than that I try basically staying on a gluten free diet. I think everyone is different. Sometimes I think if you are really unwell you just have to take antibiotics. Maybe try and get fit in your own way and build up your immune system. 🌷🌷👍

I Generally eat well but occasional I fall off the wagon and grab a chocolate bar I might try avoiding gluten for a bit see how that works out. 

Actually listen to your own body and generally your right concerning what you can and can’t have. There are a lot of medications to choose from on the market    Youre best to talk to your doctor about how medications effect you and go from there. Interestingly enough I’ve been having heart palpitations too since surgery so what does that say?? So as a result of that I take half a dose of Sotalol,  drink plenty of water and take it easy. 🤔

Add Reply

Likes (0)
Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×