I have been diagnosed with inflammatory airway disease (IAD) to go along with my inflammatory bowel disease (IBD), and am wondering if anyone in our group is dealing with both. This all started in April, when I had "walking pneumonia", confirmed on a chest X ray, but developed a persistent, mostly dry cough, which has not gone away ever since. The cough seems to come in bursts, mostly when I talk and try to expel air, which is extremely annoying and also interferes with my job because I an attorney and those in my profession have to talk a lot, both in Court and with clients. Initially, my PCP referred me to an ear, nose and throat doctor, the same one who performed my thyroid cancer surgery in 2015. He stuck a tube down my nose and into my throat, and saw inflammation in my upper trachea. He prescribed a course of prednisone starting at 50 mg tapered over 10 days, and a steroid inhaler. He said the prednisone and inhaler would clear up the cough in 2 weeks, but it didn't.
I was then sent to a pulmonologist. He diagnosed the IAD, prescribed another, longer prednisone taper starting at 60 mg, and a different, more potent steroid inhaler called Symbicort. After a month with no results, he ordered a CT scan, allergy tests and tuberculosis and breathing tests. The allergy, tuberculosis and breathing tests were all normal. There were about 5 different breathing tests they did which measured how I inhaled and exhaled, and one test had me breathing some odorless medicine from what looked like a bong, the same kind used to inhale marijuana vapors back in the day.
The CT scan was normal as far as not showing any concerning masses, but did show that my upper airways are "dilated." I guess this is the IAD equivalent of what we with IBD call "strictures." The pulmonologist called me after the scan and told me no change in diagnosis, and continue on the inhaler, and it may take a few more months to see results. It has been 6 months now with this cough.
Is anyone on the board dealing with similar issues? Am I the only one here with both IBD and IAD?