So I have had my J-pouch since 2001. It wasn't until 2017 where I would wake up in the morning and realize I had some incontinence.  Seemed to only happen when I was in a really deep sleep. And hasn't been a full on full poop episode. More like leakage. This really bothers me, as I haven't had any problems all these years. I always empty my J-pouch before bed too. I don't want to have to wear a big pad all the time just in case. But when it does happen it really makes me sad. I think to the future when I am even older. What then? I am 41 right now. What happens at 50, 60, 80's? I feel like I should amp up and do kegel exercises like a mad woman to try to help.  Any other tips? 

Original Post

No tips other than keep those muscle strong.

Always keep a blue pad under your sheets between you and the matress, sleep with a protected towel under you and give up on white sheets.

That is what I had to do for years. I have a k pouch and had a couple of very bad years where it leaked (also irritated the heck out of my stoma and skin...I needed to use Desitin cream as a barrier to protect myself) constantly, I had to wear a bag and that leaked too. 

Just not having white or light colored sheets helped me to not get depressed. 

I had a stock of those blue pads and when things were bad I had them in layers on my bed: between the mattress and the mattress pad, the pad and the sheets and the sheets and me.

I would only change if necessary. 

Have you changed anything in your diet recently that could be the culprit or cause the sudden leakage? Maybe a food allergy? 



Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
Link copied to your clipboard.