Hi Guys - Doug again. I have had this loop for 10 weeks - and my output is so high that I get dehydrated and nauseous and wind up in the ER for an IV. The surgeon said that the takedown could help. Did anyone go from a terrible loop to a successful JPouch takedown?
Replies sorted oldest to newest
Yes my loop was a nightmare. Doing good with the pouch except I am being treated for cuffitis now which I suspect I've had for awhile. My loop leaked all the time. Had to delay takedown a few days because my skin was so raw due to output and inability to get the bag to stick. I rarely have very watery stools with the pouch. Hang in there!!
Yeah I had a worse nightmare than you with the loop, similar to KMiller, but it ended with takedown. Just gotta deal with it guy, things will get better!
Oh yeah!!! My loop was terrible for my body! I am muscular so I had tons of blockages because I have a thick/muscular abdomen wall. I have had my J-pouch for 6 years and I never had a blockage. Things will get better; I promise
6 years later you will say, "That was worth it" I am 6 years out and that is what I say all of the time
Stay the course, you will be better after takedown. There's more small intestine at work once you get the jpouch connected. Sometimes with the loop ileo I shot out water like a fountain (that made me think of those weird little boy peeing fountains) and could listen to the sound of the appliance filling up. Now I get a bad watery episode maybe once every week or two, much better. Have you tried immodium or lomotil? Do you get enough electrolytes - try pedialyte.
Thanks - I have a weird mast cell disease that makes me allergic to Imodium and Lomotil because they have a little hint of narcotic dna - and I am deathly allergic to narcotics. So much so, that after all of my surgeries I can only take extra strength Tylenol post op. I am praying that the J Pouch takes care of this. Thanks for the support.