I've had a J-pouch for 17 years and in that time haven gone through normal boughts of pouchitis. I was recently hospitalized after losing half of my hemoglobin and referred to Stanford to have the pouch removed. Apparently this ulceration is at the fold of the pouch where the intestine is stitched back to back and not treatable. I'm not really happy about the idea of loosing this pouch. Has anyone out there had a similar situation.
I was also unhappy about having my 30 year J pouch removed, but recurrent high grade dysplasia and a malignant polyp in the anal canal made pouch removal necessary. I very strongly did not want an ileostomy with its quality of life issues and opted to get a BCIR (very similar to a K pouch). These options do not require having an external bag and there is a lot of information about both procedures in the internet. I have now had a BCIR for 6 years and have had no problems with it.
Interesting, I wasn't aware of the procedure. I will have to include it in my discussions with the surgeon. Thank you Bill
Briand, most people and many doctors are not aware of this procedure since the J pouch has become the most widely performed procedure for those wanting to avoid having an external bag. The two websites that I suggest you visit for more information are: www.bcir.com and www.ileostomy-surgery.com. These websites will help you prepare a list of questions for discussion with your surgeon. Please send me a PM with any questions you have and your contact information if you would like to have a phone conversation.
Ok Bill, as I move further into this I'm sure I will have a mountain of questions. Right now this is moving at a snails pace. I'll get a look at these sights and contact. Thank you Bill