My GI Doctor Dr J Garsten has retired. For 27 years he has helped me through this struggle from getting a total colectomy in 1995 through all the problems and ups and downs that go along with it. I have had fistulas, strictures and just about everything you can think of. He always had the latest news , treatments, and what was on the horizon for UC and Chrons , anything that would make my life better.
I am trying to follow his advice of going to a Doctor that was in his practice. I recently went to a regular appointment with him and he did not even touch me. He was more interested with typing on his computer.
I am in the midst of a pretty bad flare up. I am on the Prednisone, Cipro, and Flagyl regimen that knocks me to my knees but it works.
I have been on Humira for about 8 years now and before that was on Remicade. Now it was time to refill my prescription for Humira. I expected the normal PPD skin test for TB, Instead a QuantiFeron Gold TB blood test was ordered. It showed that I had TB. The Doctor told me that it was latent TB and if I took the Humira there was a chance it could become active.
After doing some reading the QuantiFeron Gold TB blood test is not accurate on people with immune disorders. I also read that there is a 33% chance of false positives. How come after being on Remicade and Humira TB was never an issue. I haven't traveled anywhere different. In my reading I think there was 62 people in Connecticut that were diagnosed with TB. Was I unlucky enough to come into extended contact with one of these people?
I would like to see another GI Doctor in CT that I can visit and talk to all of this about.
Does anyone have or know of a Doctor in Connecticut that they would recommend?
I apologize in advance for the long post.
Thank you for any help you can provide.