Around and around and around I go. Doctor to doctor to chiropractor to acupuncturist to Internist, GI, C/R surgeon, nutritionist, foot doctors, rheumy and lately a neurologist.
I have UC with a j-pouch and chronic cuffitis which is somewhat under control. I have fibromyalgia that has been in one long flare since before my surgeries started 2 years ago, GERD, thyroid issuses, and major foot problems. My feet are numb and cold 24/7. I've received several diagnosises that turned out to be wrong.
2 Weeks ago i went to the neurologist. He spent a long time testing me with waking and other tests. I did the drunk driver test where the police officer has you put one foot in front of the other, I flunked and Hadn't anythn to drink. One was I closed my eyes and told him if I felt a pin or dull feeling. I flunked that one too.
He doubled the prescription the foot doctor had given me, told me to call in after I'd been on the medication for 2 weeks and come back to see him in 3 months. I called and reported just a slight improvement and the nurse called me this afternoon saying. The doctor says that the numbness in your feet is not reversible. Confused then why give me a medication, she said that medication helps with the *****ly feeling only. He tested me for an hour, why didn't he tell me it could not be helped while I was there. I had hope that I'd finally found help and was getting to the bottom of this 10 year problem. It has gone from a small problem to a large one over that time. Is it still going to get worse. He should have called me - damn coward.
So my quality of life just is getting smaller and smaller. I'm forever doomed with numb feet. I'm going to have to quit driving or get some kind of hand operated car. I barely feel the pedals with my feet. My husband says I shouldn't be driving and he tries to take me to every appointment that is further than 6 miles around our home. Those local ones have a snow speed limit and does not involve an interstate.
No one has even figured out what caused my numb feet. Will my hands go next?
I'm sorry this rant was more about my feet than my J-pouch. UC is what hit me first years ago and then along came fibromyalgia. The rheumy said fibro didn't cause the foot pain and the foot doctor said it was caused by the fibro and the neuro says it's not reversable.
My quality of life keeps sinking and I'm getting tired of treading water.
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