I'm leaking more then the Titanic!!!

So terribly sorry sweetie,
This is just degenerating badly...you sound like there is a kink in the valve or a twist (although I still think that the pouch may just be down...)...one way or the other you may definitely need more surgery...and that is upsetting as all get out....would love to fly in to hold your hand but am finally working...will see...keep that tube in at all costs...I am now terrified that you are hurting yourself whenever you force it in and that is just making things worse...I have a diffent method to keep it in and clean...I get these colloidial patches (come in different sizes like 2x4" and 4x6" which is usually the best) and you place the tube in correctly and place the patch completely over it and press it down to get a good seal...because it is collodial it doesn't hurt the skin, (beware of body hair), but actually heals it and it holds tight the first 4-6 inches of the tube across the right hip zone and then you just plug the end...I use some cut up mini pads at the stoma to suck up the mucous but it holds it in place for a couple of days and then you change it for a new one...just try not to get it too wet at first...I am not sure who manufactures it but you can ask the stoma nurse...(or a wound nurse, that is what they usually use them for)...
Hang in there kid...
Sharon

I'm hanging honey! Lol! Not leaking today (yet!), but lot of pain, actually, I'm lying, I am leaking, but from around the catheter, so I'm assuming my valve is really screwed. Thinking back, when Julie, my stoma nurse, first removed my post op catheter, and intubated me for the very first time, she was struggling with it, and pushed really hard, I heard a pop, and a gush of blood came through the catheter, and then finally stool. She had a look of panick on her face, but denied anything was wrong, and seemed to avoid my questions when I expressed extreme concern that she may have damaged my valve.

I'm convinced now, more then ever, that she accidentally damaged my valve, and it's only gotten worse. If you recall, I was re-admitted a few weeks post op for a blockage and a twisted valve, so I suspect it's been damaged since the get go. I never said anything about it to Dr C because I didn't want to get Julie into any kind of trouble. She's a sweetheart, and a dedicated professional, but I think, with me, she made an error that she won't admit. I'm debating if I should mention it to Zane, she was so kind to me in the hospital, the last thing I would want is to get anyone reprimanded, but it explains a lot. Post op, I remember Zane telling me the valve was excellent, and that I should have no problems, ha! What do you think, should I mention it? I don't want to be the bitchy patient, after all, I'll need Julie's services again after my valve is repaired, what to do, what to do?????

Secondly, I've never asked you guys, when intubating, how often do you flush the catheter with water? When not on constant drain, I flush it with 2 or 3 syringe full of water, am I flushing too much? I occurred to me I might be flushing away essential bacteria, could it be adding to my pouchitis? Yeah, I'm pretty sure I have pouchitis, again. I had chronic pouchitis with my j pouch, stands to reason I'd get it with the k pouch as well, especially considering he used most of my old j to create the K. I'm treating it with Cipro and flagyl, twice daily (got a Px from my family doctor). Thanks, as always, for your kind words, advice, and compassion, loves ya! (And love to you all!!!)

Cheers,
Eric