Hi All! Wow, it's been a couple years since I've posted on here. Time sure does fly! Nice to see some of the regulars from a few years ago are still active on here!
I have been doing Ok for the most part, and have been one of those that are modifying diet to try to help with pouchitis. I have had chronic pouchitis for 8 years now, and have been on antibiotics pretty much all the time since 2007.
2014 was the year I planned to "get off antibiotics once and for all"..... and I was almost successful. I did Paleo for the most part, really watched sugar intake, dropped all gluten, and with that was able to go from 1000mg down to 250 or 125mg Cipro daily.....but have NOT been able to go off completely. I really thought I could do it, but no luck yet in my ultimate goal of getting off antibiotics totally. In 2015 I plan to increase my veggie smoothie regiment with my nutribullet and see if that coupled with even stricter adherence to low sugar and as little processed food as possible will finally get me off Cipro 100%.
It is good that I can manage with a low dose Cipro, but I have lost the other antibiotics in my rotation over the years - Cipro is the only thing that still works for me.
I'm in Minnesota, and I also went to a series of visits and testing at the Mayo Clinic in Rochester over the last couple years. I even worked with the head of the GI department there. That experience was a little frustrating though as I was hoping for the "magic cure" for pouchitis, but did not find it. The confirmed my "moderate simmering chronic pouchitis" but didn't have much tangible advice on how to fix it, hence my approach to address with diet.
I hope to start contributing on here again in 2015. I wish everyone the best of health!
