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Thank you, Mary. My GI doc, Bo Shen, formerly from CCF and now in NYC at Columbia Presbyterian has cautioned me that there are instances where women with a J-Pouch who get a hysterectomy have serious problems with their pouch after that surgery. I am 76 years old and have had my pouch for 21 years. I have CLL, a blood cancer that makes me vulnerable to secondary cancers and the gynecological surgeon is recommending a hysterectomy since I am have some problems with my uterus.  Your situation is very encouraging. Thank you again for responding to my question. Take care.

@Joanne posted:

Thank you, Mary. My GI doc, Bo Shen, formerly from CCF and now in NYC at Columbia Presbyterian has cautioned me that there are instances where women with a J-Pouch who get a hysterectomy have serious problems with their pouch after that surgery. I am 76 years old and have had my pouch for 21 years. I have CLL, a blood cancer that makes me vulnerable to secondary cancers and the gynecological surgeon is recommending a hysterectomy since I am have some problems with my uterus.  Your situation is very encouraging. Thank you again for responding to my question. Take care.

Agree, very encouraging Mary. I was also told by Shen to not have any pelvic organs removed unless cancerous as he sees worsening of pouch function. It was a bit hard to stomach as there are lots of gynecologic issues that are painful,  life altering, and have a negative impact on the pouch, so the “save the pouch” at all costs attitude came across as a bit obtuse from such a smart guy. Or maybe it’s just a function of not having a uterus and ovaries ;-)

It's very complicated having leukemia and vulnerable to infections that could be deadly. Any surgery increases the risk of infection. Dr Shen is the pouch expert, probably of the planet so I take his advice seriously, especially if I did have a hysterectomy, the pouch failed and I'd need ANOther surgery to transition back to an ileostomy. Another surgery, another serious risk.

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