I was 22- one week after my birthday XD
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I get mine in about 4 months and ill be 44
38. First and only flare, diagnosis, colectomy and take down were all in 4 months. I had no idea I was even sick.
60, diagnosed in April, first and only flare, hospitalized for dehydration, malnourished, on TPN, blood transfusions, shingles, SVT, Erythema Nodosum and frozen shoulder, surgery in November, 3 stages over 9 months.
I was 37. Diagnosed with UC Feb. 2006, baby born March 2006, 1st surgery May 2006 (2 days before my 15th wedding anniversary), 2nd surgery August 2006, and take down October 2006.
I didn't have any prior UC flares before this either. Things moved from bad to worse rather quickly. Thankfully, my daughter was born healthy during all this craziness.
@Kangaroo posted:38. First and only flare, diagnosis, colectomy and take down were all in 4 months. I had no idea I was even sick.
DANG!!!! 4 months??!!! Goodness!!!
@Still Standing posted:I was 37. Diagnosed with UC Feb. 2006, baby born March 2006, 1st surgery May 2006 (2 days before my 15th wedding anniversary), 2nd surgery August 2006, and take down October 2006.
I didn't have any prior UC flares before this either. Things moved from bad to worse rather quickly. Thankfully, my daughter was born healthy during all this craziness.
Especially since us women have a 50% infertility rate after J-pouch surgery, thank goodness you had kids before. I am 27 with no kids, I may have trouble in the future.
57 years. UC at 34 yrs
Got the pouch at age 36, had it removed at age 61.
@n/a posted:Got the pouch at age 36, had it removed at age 61.
Due to complications?
Got it at 23. Now 57.
I have had mine since 1985 and I am currently 53 years old.
@n/a posted:Yes, almost every one you can think of! The tipping point was a fistula that wrapped around my pouch, and a septic abscess.
Do you have any complications with your ileostomy? Like blockages, stoma retracting? etc??
No blockages. I had my pouch disconnected with an end ileostomy for a yr before pouch removal. During that 1st yr the stoma retracted often. It was revised when the pouch was removed, and is sooo much better/ longer. No real problems with it.
@n/a posted:No blockages. I had my pouch disconnected with an end ileostomy for a yr before pouch removal. During that 1st yr the stoma retracted often. It was revised when the pouch was removed, and is sooo much better/ longer. No real problems with it.
Do you have to go to the hospital when the stoma retracts???
No - I worked with my ostomy nurse. I also did not expect a revision during the jpouch removal, but my surgeon said it was kinking underneath. Am so very happy with the revision.
I got my j pouch when I was 34~~I am 70 ~~ I have had pouch longer than I did my colon. A few blockages but absolutely no other problems
I’m 79 and I think I got my pouch in 1991. I’ve continuing bouts of diarrhea. I use metamucil daily. I’ve noticed A lot of TV adds regarding treatments for UC. In my UC days it was azulfadine or prednisone. I wonder if any of the new treatments would help me with ongoing diarrhea bouts? Any advice appreciated.
I was 37 in 1992. I had an unusual amount of complications and ended up spending the summer of 1992 in the hospital finally got my J Pouch. Take down was October 1992. Unfortunately I was left with at least 12 to 14 bowel movements a day that nothing can control! So I have been suffering with malsorption and severe anemia for yrs. I also started to develop in 2004 partial bowel obstructions from adhesions. I’ve had 6 bowel obstruction that required an NG tube. I gave up eating solid food eight years ago. Everything is blended or soft. I am not going through another partial bowel obstruction Unfortunately also my surgery left my central nervous system compromised. I have been without full use of my balance since my surgery they have no idea what happened. I know that I am an unusual case. Most do far better with the surgery and it is life-saving. I was able to take care of my child and see my grandchild be born for that I am grateful. But I have always wondered for those of us that got the surgery in the early 90s when the incision Was apparently done differently than it is now do we suffer with more adhesions? Ty