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I was 37.  Diagnosed with UC Feb. 2006, baby born March 2006, 1st surgery May 2006 (2 days before my 15th wedding anniversary), 2nd surgery August 2006, and take down October 2006. 

I didn't have any prior UC flares before this either.  Things moved from bad to worse rather quickly. Thankfully, my daughter was born healthy during all this craziness.

Especially since us women have a 50% infertility rate after J-pouch surgery, thank goodness you had kids before. I am 27 with no kids, I may have trouble in the future.

I was 37 in 1992. I had an unusual amount of complications and ended up spending the summer of 1992 in the hospital finally got my J Pouch. Take down was October 1992. Unfortunately I was left with at least 12 to 14 bowel movements a day that nothing can control! So I  have been suffering with malsorption and severe anemia for yrs. I also started to develop in 2004 partial bowel obstructions  from adhesions. I’ve had 6 bowel obstruction that required an NG tube. I gave up eating solid food eight years ago. Everything is blended or soft. I am not going through another partial bowel obstruction Unfortunately also my surgery left my central nervous system compromised. I have been without full use of my balance since my surgery they have no idea what happened. I know that I am an unusual case. Most do far better with the surgery and it is life-saving. I was able to take care of my child and see my grandchild be born for that I am grateful.  But I have always wondered for those of us that got the surgery in the early 90s when the incision Was apparently done differently than it is now do we suffer with more adhesions? Ty 

@JK Love posted:

I’m 79 and I think I got my pouch in 1991. I’ve continuing bouts of diarrhea. I use metamucil daily. I’ve noticed A lot of TV adds regarding treatments for UC. In my UC days it was azulfadine or prednisone. I wonder if any of the new treatments would help me with ongoing diarrhea bouts? Any advice appreciated.

SInce you are older, do you have problems holding it and do you go more often now???

@Justine posted:

I was 37 in 1992. I had an unusual amount of complications and ended up spending the summer of 1992 in the hospital finally got my J Pouch. Take down was October 1992. Unfortunately I was left with at least 12 to 14 bowel movements a day that nothing can control! So I  have been suffering with malsorption and severe anemia for yrs. I also started to develop in 2004 partial bowel obstructions  from adhesions. I’ve had 6 bowel obstruction that required an NG tube. I gave up eating solid food eight years ago. Everything is blended or soft. I am not going through another partial bowel obstruction Unfortunately also my surgery left my central nervous system compromised. I have been without full use of my balance since my surgery they have no idea what happened. I know that I am an unusual case. Most do far better with the surgery and it is life-saving. I was able to take care of my child and see my grandchild be born for that I am grateful.  But I have always wondered for those of us that got the surgery in the early 90s when the incision Was apparently done differently than it is now do we suffer with more adhesions? Ty 

I am soo sorry to hear that! I had multiple problems with my ostomy- I kept getting blockages due to a thick, muscular abdominal wall. Everything has its pros and cons unfortunately.

@JK Love posted:

I’m 79 and I think I got my pouch in 1991. I’ve continuing bouts of diarrhea. I use metamucil daily. I’ve noticed A lot of TV adds regarding treatments for UC. In my UC days it was azulfadine or prednisone. I wonder if any of the new treatments would help me with ongoing diarrhea bouts? Any advice appreciated.

Somebody said that Remicade makes thicker stool, I am not sure if that is the case with everybody, might want to ask gastro

I was 37 years old. I’ll be 65 next month so with the kids with this. The only thing that slows down my bowel movements and makes them have more consistency is when I am on amoxicillin. Are usually take amoxicillin when I have extra bacteria in my stomach because I developed severe Gerd and esophagus Issues over the years. But I can’t be on antibiotics every day. Nothing works to slow down the diarrhea or the number of bowel movements a day. I’ve learned to live with it.

I was 33 in 1994. Had UC for 9 years prior. Had Jpouch for 26 years. Redo In 2009. Have diarrhea consistently. Meds only work for a few days then stop. Trying Loperamide Gel tabs and they seem to be working. Most pills go right through me. Now I have kidney disease stage 2 going into stage 3. WS hospitalized for a month after redo and was given Toradol which caused the kidney disease. Can’t take any NSAIDS. Just bought a Bio Bidet and it’s a life changer! 

Its ok, haven't been one of the lucky ones running around after 3 weeks but at just about 5 months i feel much better. Patience is key! I see improvement every week and can get out now, shop, go out to eat. I work from home.. I eat a lot more variety, haven't really had butt burn, and actually slept all night this week! You will get lots of support and info here. 

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