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I dehydrated many times when I had my loop ileostomy; to such an extend, on each occassion I was rushed to hospital by ambulance for IV rehydration.

I was advised that, as a guide, I should consume enough fluids so I urinate at least 3 to 4 times per day, urines hould be of a light straw colour regardless.

If feeling fatigued and suffering from cramp, then your electrolytes require replenishing.

When I feel fatigued, I drink the St Marks emix solution.

Last edited by Former Member

When I first had my pouch and was released from the hospital I was told to drink.  I also had the loop ileo at the time.  Well.  Needless to say by me not listening two days out I passed out black and blued the side of my face and it put me in the hospital for another 17 days!  

Even now that that is all over with I live in a hot state and minimum I drink 6 bottles a day.  Today was 100 degrees.  I can down a whole bottle at once and still need more.  So I lost count today.  I work outside.  Not in direct sunlight but outside nonetheless.  I can tell by the way I feel if I am getting dehydrated.  After three years with no colon my body has certain signs I recognize. 

But like Scott said.  All depends on the individual.

Richard. 

Mysticobra posted:

When I first had my pouch and was released from the hospital I was told to drink.  I also had the loop ileo at the time.  Well.  Needless to say by me not listening two days out I passed out black and blued the side of my face and it put me in the hospital for another 17 days!  

Even now that that is all over with I live in a hot state and minimum I drink 6 bottles a day.  Today was 100 degrees.  I can down a whole bottle at once and still need more.  So I lost count today.  I work outside.  Not in direct sunlight but outside nonetheless.  I can tell by the way I feel if I am getting dehydrated.  After three years with no colon my body has certain signs I recognize. 

But like Scott said.  All depends on the individual.

Richard. 

what are your signs?

Lightheaded.  Ringing in my ears.  And just a feeling I know I have not had enough water.  It's hard to explain that part.  It's an overall feeling.  Standing up fast and getting lightheaded is a sure sign.  Or really just standing up at my age.  I don't get it much.  I drink constantly. 

Funny thing is before I went through all of this I hardly drank anything at work.  I would have a coke at lunch and a few sips.  I don't know how I got away with that.  I have a water bottle with me at all times no matter where I go. 

Richard. 

Unless your thirst mechanism is not functioning properly you should rely on that. I'm sure they're people on hear that will disagree but drink when you're thirsty. That's all I've ever done and have never become dehydrated due to not drinking enough. If on the other hand you have a bad case of pouchitis or something then that method will not work as well and you have to force the fluids.

dew posted:

Unless your thirst mechanism is not functioning properly you should rely on that. I'm sure they're people on hear that will disagree but drink when you're thirsty. That's all I've ever done and have never become dehydrated due to not drinking enough. If on the other hand you have a bad case of pouchitis or something then that method will not work as well and you have to force the fluids.

BINGO! 

Why couldn't I think of that.  I worked 10 hours yesterday. 

Sure wasn't brain freeze in this heat.  

But your right.  I said it above and couldn't come up with what you said. 

Sometimes I can down a whole bottle at once refill it and drink more.  

If your thirsty.  Drink.    Jeez.. 

Richard. 

I never feel thirsty, can't remember a time when I've ever felt " thirsty."

On occasions I do tend to always feel hungry and apparently always feeling hungy, especially soon after eating, is a sign of dehydration and our bodies, especially mine, misunderstanding the signals.

The colon normally absorbs fluid so once removed, we need to consume more fluids to compensate and also replenished our electrolytes.

For myself and some forum member, drinking when feeling thirsty, it's not as clear cut as that; I found dehydration crept up on me, I begin to feel tired and before I knew it, I found myself unable to stay awake and I lacked the motivation to actually get up an make a drink.

Once I've dehydrated to such an extend I need more than just fluids, I need to replenish my electrolytes too.

Last edited by Former Member

A lot of good info. here....I think i've been chronically dehydrated with my pouch because I don't "feel thirsty" at times, but will get light headed when standing up at times and I don't feel like getting out of bed in the morning when I'm really dehydrated. I will begin to force more water consumption even though I don't "feel" thirsty.

I have had the same problem as you when I wake since I had my colon removed.  And being really exhausted easily as the day rolled by. 

I finally had my blood tested for everything about a month ago.  I mean every morning I was waking and feeling like I had been run over by a truck. 

Well come to find out my iron levels were low.  I have always  had high iron levels.  So it was a surprise to me.  Having it removed has something to do with iron absorption.  Read up on it and you may want to be tested. 

It has made a big difference in my energy levels and how I feel when I wake.  I don't feel so bad.  I am not dead tired after an eight hour shift.  I didn't realize how important iron is until I read up on it after I found out I had to take an iron supplement.  But even after three weeks of taking an iron supplement I can feel a noticeable difference.  

I am just happy it was something  simple.  I wouldn't want to live the rest of my life being chronically fatigued. 

Richard. 

I drink a lot of fluids (not just water but mostly) but not all fluids are of the same hydration value...I was pleased to hear that everyone was speaking about water consumption and not just fluids. Water is still the best hydrator for humans.

My thirst mechanism is off, or doesn't ring or I was trained out of it with all of the I.V.s and fasting so I do not get thirsty or confuse it with hunger too, like Strange. 

My doctor gave me 2 rules, 1 is when you are thirsty it is already too late.

You should not wait until thirst to drink but drink regularly and often...thirst means that it has already gone too far on the dehydration scale.

Next is drink when you are hungry and wait and see what happens...your hunger may just vanish.

I also keep a glass or bottle of water beside me at all times just in case.

Temoty, some of the other signs of dehydration can be mental confusion, inability to concentrate, irritableness, sweating, clamminess, anger, seeing things, dried out skin on the top of your hand and a loss of elasticity in your skin (it sort of hangs there)...it is often confused with dementia or Alzheimer's in older people when in fact they are really just dehydrated...plump them up and the problem goes away rather quickly. 

Sharon

During my many hospital admissions for dehydration, I'm certain the Doctors advised that to ensure I remain hydrated, I should ensure I urinate NO LESS than 3 times a day, aiming for at least 3 or 4 times per day as a minimum.

Apparently, it's a more of a reliable guide to measure a safe fluid output rather than intake, as there's too many variables, such as size, age, activity etc.

Also, one persons fluid intake can be very different to someone else; where as the urine output, is the fluid the body no longers requires, regardless of how much fluid has been consumed. 

Last edited by Former Member

I've always drunk a lot of water every day, even before I had the pouch, around 2 to 3litres although I do a lot of exercise.

after takedown I was advised, at first to bring that down to a litre a day, as too much water can make you dehydrated as everything passes through too quick.

I was also told to make a rehydration drink and have a litre of that a day.

it helped a lot, after a month or so I didn't need it and I now drink the same amount of water I used to before I had the pouch. I never really get dehydrated.

fyi instructions for the home made drink are here:

http://www.surreyandsussex.nhs...-Electrolyte-Mix.pdf

 

Last edited by Shainy

We are all different, and you may actually find that you need to drink less as time goes on, as your body does adapt.   It's natural in the beginning to feel that you need to drink constantly, but this can be dangerous in itself as if you drink too much, you are actually flushing out electrolytes. 

Do not let thirst guide you. If you are thirsty, you are probably already starting to become dehydrated. Also, I was told by a dietitian not to let urine colour guide me either, as it can be misleading. Darker urine does not necessarily mean you are dehydrated - supplements, diet, medication, etc all affect urine colour, so if you are drinking to obtain the so called "clear" or pale yellow urine,  you also have to factor in those issues when you are trying to gauge fluid intake. (for example, B vitamin supplements can turn your urine very yellow. Iron, beets, fava beans, and asparagus can also cause a darkening of the urine).

If you are looking for a guideline to start, the dietitian I saw after my colectomy suggested that I aim for 8 glasses of water a day initially (this is in addition to other fluids I would normally get in my diet - tea, soup, etc), and then adjust up and down from there depending on urine output (if you are peeing once at hour, for instance, you are probably drinking too much). Also, you are going to need more water if the weather is warmer or if you are exercising.  Remember too that tea, juice, soup, etc, all count toward fluids.

Last edited by Spooky

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