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I currently take  3 per day (breakfast, dinner, bedtime).  

My GI doc wants me to get to 2 per day.

Every time I  attempt 2 per day I get watery and burning stools.

my pouch takes a little extra time to empty during my first BM of the day, but the rest of the day I have ok BMs and pouch fully empties .

after months and months of trial and error my magic number is 3 per day.

Everyones motility is different, so too much Imodium is the amount that would cause an uncomfortable constipation situation. My understanding it is safe on a long term basis for us pouchers. It has given me a very decent QOL.

Last edited by New577

My gi doctor and nurses have all said that it's safe to take up to 8 Imodium per day. With my loop ileostomy, I was taking 5/day and still never got to applesauce consistency consistently, but I was afraid to take more and slow things too much. This week i left the hospital after my takedown with a script to take 2 Imodium every 6 hours. While you only want to take as much as you need, taking up to 8/day is safe, according to multiple gi doctors.

I have been on 8 immodium per day, 2 with each meal and before bed, for 15 years.  I have about 6 BMs per day.  Pouchitis maybe 1 per year.  Taking Entyvio also for 3+ years.  I hate to think of the Entyvio the rest of my life but have been told if you stop, the UC or Cronhs gets worse.  Any info out there for me ?  I would like to try the Metamusil.  Should my trial period be a week or more for my body to get used to it or ?   Any info you can give me would be appreciated.

@De posted:

I have been on 8 immodium per day, 2 with each meal and before bed, for 15 years.  I have about 6 BMs per day.  Pouchitis maybe 1 per year.  Taking Entyvio also for 3+ years.  I hate to think of the Entyvio the rest of my life but have been told if you stop, the UC or Cronhs gets worse.  Any info out there for me ?  I would like to try the Metamusil.  Should my trial period be a week or more for my body to get used to it or ?   Any info you can give me would be appreciated.

A week is likely to be plenty of time to dee if psyllium (Metamucil) is working for you at all. It might take longer to find the ideal dose/frequency.

My surgeon told me not to use the metamucil in the first two weeks post-op, because it "could make things worse." Then he had me start 1tsp/day starting at two weeks post-op. He told me that it could be weeks before my body got used to the psyllium husk. I have an active intestine like you, De. I noticed a difference immediately. My next poops afterwards are more gelled. He warned about not stopping it just because of some uncomfortable bloating. But I don't notice the bloating as much as I notice that I have less of that constant feeling that I have to go to the bathroom. I am only 4 weeks post takedown, though, so everything is very new and raw for me. He said we can increase husk as I get used to it. If it can reduce my Imodium use, I would prefer it. YMMV.

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