How many j pouchers are out there?

I don't have overall numbers, but I do have a couple of individual hospital stats that might shed some light.

At NYGH in Toronto, as of about 2008, they do about 3 per year. At Mt. Sinai, which is considering one of the top if not the top IBD centre in Canada, they do about 12 per month (though I'm told they are starting to do more and more for cancer patients). Mt. Sinai, however, services a much wider area and people come from all over the province to have surgery there. Either way, though, you can see that those numbers really aren't very high in terms of the general population. I'd also be curious to know just how frequently this surgery is done.

At Cornell in NYC, after each of my ops a nurse always told me that there was at least one other person on the ward who had had the same surgery. Unless it was a huge coincidence, that suggests about 12 per month by some back of the envelope math (2 per ~5 days).

Mt Sinai undoubtedly does more, I'd be curious if anyone knows about them.

Also, we have ovaer 14,200 registered members on this site.

Jan

The dietician at Sharp Memorial Hospital in San Diego told me I was only the 7th patient she has seen in her 15 years of working at Sharp.

However, I find it strange that her assistant has a J-Pouch, my daughter's co-worker has a J-pouch and I have a distant relative who has had a J-pouch for over 20 years.

Prior to my need for a J-Pouch, I had never heard of the surgery.

If you consider the fact that 25-30% of UC patients ultimately wind up needing a colectomy, that is a pretty high amount (at least of UC patients). While it is a fairly common disease by some standards, it is rare by others. But not everyone who needs colectomy gets a j-pouch. A percentage choose or require an ileostomy, and a much smaller segment go for a continent ileostomy.

In addition, there are those with FAP, and a few other diseases, such as colon inertia or damage from trauma to add to the list.

Jan

Hi I am new to site but according to Cleveland clinic web site they do 200 jpouches a year.I had mine in 2011.

To add a bit of UK statistics to the thread, I believe the average is 4-5 per hospital a year here. My surgeon at the RD&E in Exeter told me he did 10 last year though.

Being that I work where there is a public restroom in a busy place - it sounds/smells like there are MILLIONS of J-pouchers visiting "my" bathroom every year...

Sometimes I just want to ask who did your surgery and did you just pushed out a massive blockage just now!

Do you have an update on active members now? I saw the post was from 2 years ago (14,200) so was wondering if anyone know she..

My husband had his done 20 years ago at GW.